WES ❤

Thank you Mrs. Laird and everyone in Johnny’s 2nd Grade Class for these wonderful pictures we received in the mail. Would also like to thank Mrs. Kaplan for getting Johnny’s pic in the WES Yearbook. Our Principal Mr. Savage and his staff, SIMPLY AWESOME !

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Seams of Hope

Thank you Alyse, we received your blanket in the mail today and Johnny loves it. Alyse founded Seams of Hope at the age of 13 to support children with life-threatening medical conditions, especially DIPG, an inoperable childhood brain cancer.  She sews blankets and pillows, and sends them in care packages to children all over the […]

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Katherine the Brave

3 years ago today, the world lost this beautiful angel to DIPG. Please take a moment to read her incredible story, please. https://www.facebook.com/KatherineTheBrave/ https://katherinethebrave.org/ #‎KatherineTheBrave

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How is Johnny?

Johnny is able to chew soft foods now, this actually has been a good week. In January his jaw was locking, and he couldn’t swallow anything except liquids. But now Johnny eats soups, fruit, yogurt, cereal, oatmeal, rice and even had the top of some pizza yesterday. The powerful strain used to create his Full […]

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Survivor

In the four years that the Khmer Rouge ruled Cambodia, it was responsible for one of the worst mass killings of the 20th Century. The brutal regime, in power from 1975-1979, claimed the lives of up to two million people. Under the Marxist leader Pol Pot, the Khmer Rouge tried to take Cambodia back to […]

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WES – PTO ❤

Thank you WES – PTO for donations from Feb. Bingo Night. I would like to express my gratitude for all the kind and thoughtful wishes during this time of need. All your prayers and kindness are providing Johnny strength as he fights towards recovery. It’s been a long seven months and a lot of hard […]

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Delaware ❤

Johnny continues to consume 1 gram a day of Full Extract Cannabis Oil (FECO). Here is more information on the current Pure Indica Strain: Purple Punch Thank you C ! “When you smoke the herb, it reveals you to yourself.” Bob Marley

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How is Johnny?

Johnny’s Acupuncture #8 (both sides of the head, left shoulder, outside of lower left leg)

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How is Johnny?

Johnny’s Acupuncture #7 (left side and back of the head, outside of upper legs)

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Toddler defying the odds

When Elyse Johnson was diagnosed with DIPG (diffuse intrinsic pontine glioma) in April, 2016, her family was told she had just months to live. More than two and a half years on Elyse has just celebrated her fifth birthday. Her mother Casey Johnson said against all odds her tumour had been shrinking. A one cm […]

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How is Johnny?

Johnny’s Acupuncture #5 (back of the head, center of back and legs)

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How is Johnny?

Since starting Acupuncture Treatments last week, Johnny has been experiencing less muscles spasms during the day. Also his daily Full Extract Cannabis Oil is now made with a Pure Indica strain, thank you C ! WHAT STRAIN SHOULD I USE ? The best would be to use pure Indica, which gives the oils they produce […]

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How is Johnny?

Johnny has started acupuncture treatments to help manage the painful muscle spasms in his legs. Acupuncture in Cancer Treatment  

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How is Johnny?

Johnny is currently taking 1 gram a day of Full Extract Cannabis Oil (FECO). He also has oil cartridges to control pain from muscle spasms that occur in both legs. Everyday is a fight for Johnny. You never know how strong you are until being strong is the only choice you have.

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Merry Christmas

John 3:16 For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life

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WES ❤

Thank you Mrs. Laird & everyone in Johnny’s class ! We received many wonderful Christmas cards in the mail, here they are: Also, here is a great picture of everyone in his class: There has been so much support from WES and the extended WES family ! Johnny has received donations from many many people […]

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WES ❤

Happy Thanksgiving ! Here is an awesome card from everyone in Johnny’s class, thank you Mrs. L for sending this:

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WES ❤

The Best Card in the WORLD ! Signed by EVERYONE @ Wallingford Elementary School Thank you !!

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WES ❤

Thank you Mrs. K, Mrs. L, Mrs. G and all the wonderful teachers at Johnny’s School. We love everything that you have been sending in the mail ! Thank you WES students for creating these special get-well-cards for Johnny. Mrs. K >>> Mrs. L >>> Mrs. L >>> Mrs. G

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WES ❤

Johnny today @ school. Happy Halloween !

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Magnetic Resonance

Johnny completed his MRI yesterday @ CHOP The tumor appears to be breaking down inside. Please keep praying for Johnny, God is listening.

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Supporting Elyse

Medicinal Cannabis Tilray CBD THC Oil https://www.facebook.com/SupportingElyse/

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Pain Management

This week, Johnny has been experiencing painful cramps in his left leg. He wakes up screaming as his knee and toes are locked, not under his control. Katsu Bubba Kush is an excellent strain that helps control muscle spams, and provides strong pain relief. He is starting to feel better now. Trying to get back […]

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WES ❤

Johnny had a great day at school today. He sat at his desk for the first time this year, and it was nice to see all his classmates helping and supporting Johnny. He really feels like he’s part of the class. Thank you WES.

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Countdown to MRI

Johnny continues to consume a very special Rick Simpson Oil (RSO) from Delaware. This week we added Standard Farms MAZAR (CO2 extract) to his cannabis treatments. Countdown to MRI @ CHOP When I am afraid, I put my trust in you. Psalm 56:3

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Never Give Up

I’m a fighter, I will not give up I will stumble & I will fall but I will stand back up It might take longer at times but I WILL stand back up & keep fighting

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WES ❤

Thank you Wallingford Elementary School for making Johnny feel so welcome today at school. It was real nice for him to get to meet everyone and see friends from last year.

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Natural Energy

Johnny completed radiation 2 weeks ago, and now relies only on cannabis treatments. He continues to eat a high dosage of Rick Simpson Oil (RSO) each day. This is very expensive and time consuming to produce, but it is a whole plant extract containing all the medicine. For natural pain relief, Johnny consumes Pennsylvania Medical […]

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WES ❤

Thank you everyone @ Wallingford Elementary School for all your overwhelming love and support !! Johnny is fighting hard to come back and misses everyone.

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Physical Therapy

Johnny is now going 3 days a week to physical therapy. Thank you Liz @ Nova. This Indica strain allows Johnny to relax with zero pain, and really helps his legs during stretching. https://www.leafly.com/indica/jorges-diamond

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Muscle Spasticity

Friday, Johnny was screaming in pain as his legs were locking without his control. This Indica strain removed all muscle spasticity in the legs within 10 seconds, and it has not returned. Salmon River OG #4 https://www.leafly.com/indica/salmon-river-og

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How does Cannabis Help Johnny?

The following are common ways cannabis can help cancer patients: Alleviate chronic pain – Chronic pain is considered one of the most severe side effects of cancer and cancer treatments. Many cancer patients use marijuana to manage symptoms over prescription painkillers. Cannabis is considered a less-addictive and non-toxic alternative compared to pharmaceutical drugs. Reduce nausea […]

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The 1st Rule of Fight Club

Thank you Cynthia @ Delaware, without you Johnny wouldn’t last long in this fight. Your resources have made this ‘mission impossible’ possible. Status Update: Johnny has finished radiation, and is in very rough shape. Thank you everyone for your prayers and support.

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Flower Power

Very powerful pain relief is now available for Johnny (registered with PA Medical Marijuana Program) Louis XIII OG https://www.leafly.com/indica/king-louis

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First Fight

8 years ago I heard a scream from the downstairs bathroom. I would say after 20 seconds of screaming I went down to check things. There was my step mom 9 months pregnant with Johnny inside and a snake standing up right in front of her. I looked for something close by like a bat […]

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Within a Cry

When your child falls down and cries, you comfort them letting them know its going to be alright. Now we just cry together, it is the saddest sound (but within that cry is hope).

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What is Johnny’s Fight?

In late June, my 7 year-old son Johnny began having problems with balance. He has always been very active in sports including karate, and that is where we noticed something was wrong. On July 17, 2018 he was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a highly aggressive and difficult to treat brain tumor found […]

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