Year: 2019

WES ❤

Thank you Mrs. Laird and everyone in Johnny’s 2nd Grade Class for these wonderful pictures we received in the mail. Would also like to thank Mrs. Kaplan for getting Johnny’s pic in the WES Yearbook. Our Principal Mr. Savage and his staff, SIMPLY AWESOME !

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Seams of Hope

Thank you Alyse, we received your blanket in the mail today and Johnny loves it. Alyse founded Seams of Hope at the age of 13 to support children with life-threatening medical conditions, especially DIPG, an inoperable childhood brain cancer.  She sews blankets and pillows, and sends them in care packages to children all over the […]

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Katherine the Brave

3 years ago today, the world lost this beautiful angel to DIPG. Please take a moment to read her incredible story, please. https://www.facebook.com/KatherineTheBrave/ https://katherinethebrave.org/ #‎KatherineTheBrave

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How is Johnny?

Johnny is able to chew soft foods now, this actually has been a good week. In January his jaw was locking, and he couldn’t swallow anything except liquids. But now Johnny eats soups, fruit, yogurt, cereal, oatmeal, rice and even had the top of some pizza yesterday. The powerful strain used to create his Full […]

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Survivor

In the four years that the Khmer Rouge ruled Cambodia, it was responsible for one of the worst mass killings of the 20th Century. The brutal regime, in power from 1975-1979, claimed the lives of up to two million people. Under the Marxist leader Pol Pot, the Khmer Rouge tried to take Cambodia back to […]

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WES – PTO ❤

Thank you WES – PTO for donations from Feb. Bingo Night. I would like to express my gratitude for all the kind and thoughtful wishes during this time of need. All your prayers and kindness are providing Johnny strength as he fights towards recovery. It’s been a long seven months and a lot of hard […]

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Delaware ❤

Johnny continues to consume 1 gram a day of Full Extract Cannabis Oil (FECO). Here is more information on the current Pure Indica Strain: Purple Punch Thank you C ! “When you smoke the herb, it reveals you to yourself.” Bob Marley

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How is Johnny?

Johnny’s Acupuncture #8 (both sides of the head, left shoulder, outside of lower left leg)

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How is Johnny?

Johnny’s Acupuncture #7 (left side and back of the head, outside of upper legs)

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Toddler defying the odds

When Elyse Johnson was diagnosed with DIPG (diffuse intrinsic pontine glioma) in April, 2016, her family was told she had just months to live. More than two and a half years on Elyse has just celebrated her fifth birthday. Her mother Casey Johnson said against all odds her tumour had been shrinking. A one cm […]

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How is Johnny?

Johnny’s Acupuncture #5 (back of the head, center of back and legs)

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How is Johnny?

Since starting Acupuncture Treatments last week, Johnny has been experiencing less muscles spasms during the day. Also his daily Full Extract Cannabis Oil is now made with a Pure Indica strain, thank you C ! WHAT STRAIN SHOULD I USE ? The best would be to use pure Indica, which gives the oils they produce […]

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